The food allergy community continues to express a need to focus more on the mental/behavioral health needs of individuals and families managing food allergies. Some may find this path relatively easy to navigate, while others share that they wished they had more support, including access to food allergy-knowledgeable clinical behavioral health professionals.
To gain a better understanding of these needs, Tamara Hubbard, LCPC recently created a short survey to obtain basic data on the desire for food allergy behavioral health services and gaining access to them.
Below are the results from a two-question survey titled "Access to Food Allergy-Knowledgeable Behavioral Health Professionals Connected w/Allergy Practices".
(This survey was circulated on social media and throughout food allergy support groups. At the time this was published, there were 116 participants who had taken the survey).
Yes = 70.7%; Maybe = 22.4%; No = 6.9%
Yes = 73.1%; Maybe = 19.1%; No = 7.8%
In addition to answering the two questions, participants were able to leave comments on this topic. Below are many of the responses:
The results of this survey show that more than 70% of the respondents would like access to food allergy-knowledgeable clinical behavioral health professionals. Many also are in favor of the counseling professional and their allergist collaborating in some manner to offer services that positively impact body AND mind.
Based on these results, it suggests that allergists have an opportunity to differentiate themselves from their peers by offering a holistic approach, which address the medical and mental health needs of their food allergic patients.
---What are your thoughts on these results,
and the general need for food allergy mental health services? ---
When an editor for the American Counseling Association's online magazine, Counseling Today, reached out to me a couple of months ago to talk about food allergies, I was not only flattered, but excited that she wanted to learn more about this population.
Her goal? To write an article on how licensed counseling professionals can help and support clients with food allergies, especially those that are struggling to find an emotional balance.
The editor, Bethany Bray, asked thoughtful questions and listened intently to my responses. She truly took the time to put herself in the shoes of those managing a food allergy. After talking for an hour, she definitely had a better understanding of the emotions that many food allergic families feel, and got that this conversation was just the "tip of the iceberg" on this vast topic.
The article, entitled "Supporting clients through the anxiety and exhaustion of food allergies" was published last week. Boy, does it paint a pretty accurate picture! Those that have read it has shared that they felt that it truly hit on some of the emotions that aren't always as well-represented, such as the feelings of burnout and exhaustion.
The American Counseling Association is "the world's largest organization representing professional counselors in various practice settings." Their online magazine, Counseling Today, is read by thousands of counselors, which means the topic of supporting clients with food allergies has been shared with many in this helping profession.
So let's tell them thanks! Consider leaving a supportive comment on their article to let the American Counseling Association (and the editor) know that we thank them for exploring food allergies and sharing tips with counselors so they are better prepared to understand the needs of the food allergic community. (Be sure to click on the article link, in the text above, or posted again below, and leave a comment there so that they see it).
Article: Supporting Clients Through the Anxiety and Exhaustion of Food Allergies
(If you're reading this, you've likely already read Part 1 of the "4 Things Counselors Should Know About Food Allergies" series. If not, I'd suggest you read that one first).
In Part 1, we explored some basic concepts about food allergy-related anxiety. We bridged the path between anxiety and its impact on quality of life. We touched on how the anxiety is different than generalized anxiety, as it's clearly connected to continual perceived and actual health threats.
There's something else that tends to cause an additional layer of anxiety for those managing food allergies: reading (and trusting) food labels.
#2 - Food Labeling Laws Often Create An Additional Layer of Fear
It's often assumed that food products will have clear and consistent labeling, highlighting not only the ingredients, but also whether the food was manufactured on the same line or in the same facility as allergens. Unfortunately, it's not that cut and dry, which often adds an additional layer of fear and anxiety for those managing food allergies.
Per this article on Kids With Food Allergies,
As stated, thanks to the Food Allergen Labeling and Consumer Protection Act of 2004, there are some guidelines for food labeling, but there's still lots of grey area for food allergic people to navigate. To begin with, in the US, only the top eight major allergens are required to be clearly listed if they're an ingredient, leaving those with allergies to other foods potentially unsure if it's in that food item. Additionally, given the fact that there's no requirement or standard language to use when a company *voluntarily chooses* to disclose that an allergen was used in or near the preparation of the item, that uncertainty continues to grow.
Imagine if you already had fight-or-flight levels of stress due to day-to-day food allergy navigation, and then were tasked with trying to buy foods for your child that were deemed safe, despite the current labeling laws. It might feel like trying to solve a Rubix Cube without any directions - doable, but extremely challenging! With labeling laws that aren't required to be completely forthcoming, consistent and transparent, those uncertainties just get piled on top of the already high levels of anxiety, and that's where the work is needed.
Here's what some people managing food allergies say on this topic:
Essentially, for those managing food allergies, buying food can feel a bit like playing Russian Roulette, especially for those that are newly diagnosed and may be feeling overwhelmed with most decisions. Most people don't know how much of their allergen their body can handle before reacting (this is also known as their allergen threshold). For some, reactions start by just touching the allergen (especially if they then touch their eyes, nose, or mouth), or by ingesting even trace amounts.
It's important to know that all people with food allergies have varying degrees of comfort with their allergen. That comfort level is typically based on a combination of things - information from their allergist, any previous reaction experiences, and how much risk they're willing to take. Therefore, some of your clients may not pay much attention to the voluntary "may contain" labels and likely won't find food shopping as stressful. But for those that do avoid items with a "may contain" warning, expect the stress levels to be higher. It will be essential to help these clients assess potential risk levels when buying foods (or eating out), learn to navigate the intrusive fearful thoughts surrounding food choices, and establish their comfort zones with a variety of foods. Additionally, as is the case in working with anyone with a food allergy, it will be crucial to help them learn to accept that no matter what, there will be a degree of uncertainty in *all* choices, but that it doesn't always mean something is unsafe.
It's important to understand how current food labeling laws impact those managing food allergies, how it may present an increased risk of reaction, and how this combination of factors often adds an additional layer of anxiety. Without understanding this aspect of the food allergy puzzle, you'll be putting it together without all of the pieces in play.
Subscribe, bookmark, or stay tuned for parts 3 & 4 of the
"4 Things Counselors Should Know About Food Allergies" series!
If you're working with a client who has food allergies and feel you need more information to educate yourself, check out the following resources, in addition to the links within this post:
Follow Tamara on Twitter or get relevant updates on The Food Allergy Counselor - Directory, Resources & Blog Facebook page
Connect on Facebook via Tamara Hubbard, LCPC counseling page
Don't miss a blog post! Subscribe below: